Faces of Spina Bifida: Meet Esther-Faith, Alex, and Arwen!

Meet Esther-Faith

(Caleb's future wife-it's already been decided)

(5 1/2 years old)

"I wish I knew...

That the journey may feel lonely, but only when I don't look around and see the awesome people on the path with me.

That there would be frightening moments, but that those moments are a mere fraction of the life with Esther-Faith.

That she would be so wonderful. And that being her mom would be the greatest gift.

That she would provide the healing that Isaiah's heart needs. 

That loving her would change everything.

That even though caring for her can be difficult, loving her is the easiest thing.

That she would be Isaac's best friend. And he would be her's.

That Spina Bifida does not define her. She is SO MUCH MORE. 

I wish someone would have congratulated me. Instead of dwelling on the shock of the diagnosis, I wish someone would have pulled me aside and said, "Congratulations. You're having a baby. And it is going to be awesome."

Blog:  Henn House

Meet Alex

(2 years old)

"I wish I would have had a crystal ball into the future, doesn't everyone? I wish I could have trusted God more. He doesn't make mistakes. I wish I would have listened to the "experts" less and my heart more. "They" told me he would have a poor quality of life. HA! Alex is full of life and happiness and makes everyone else around him smile too. No he can't walk but that is hardly the measure of quality of life or his abilities to be happy. Alex shows us that every day when he's racing around in his wheels giggling as loud as can be."

Blog:  Our Double Blessings

Meet Arwen

(20 months old)

"She is a happy 20 month old toddler who loves life and keeps a smile on her face even when her life goes through the trenches. Her fighting spirit and strength come only from our Savior, Jesus Christ who already paid the price for her on that cross so many years ago. We pray that Arwen clings to that hope through every trial, tear, joy, and miracle that she faces."

The month is almost over people so stop slackin'- if you want your kid featured then email me:  cassie.mclelland@gmaildotcom