I guess we are about as ready as we are going to be for tomorrow's surgery. I have been amazed and touched by how quickly people scrambled to help Glenn and I out. I was overwhelmed by the support we received from our church family. There are already meals in place for the next couple of weeks, Caleb received a Nintendo 3DS on loan from a friend, we have a portable DVD player to keep him entertained, and someone put together a giant snack basket for us to take to the hospital. I have received over 100 comments and messages on Facebook from people offering prayers, encouragement, kind words, and bible verses. I love it. I printed out several of the messages I have received, along with the bible verses. I'm going to put those up in the hospital room. We have such a great support system and it has helped us tremendously. I have done all that I can to prepare as well. I've packed our bags. I've put together a huge container of crafts, coloring books, markers, glue, scissors, construction paper, and a journal. I made a poster board that reads: "We ♥ Caleb!". I'm going to hang it up in the hospital so that everyone that visits Caleb can sign it. We told Caleb about the surgery over the weekend. I was dreading that. But, all things considered, he took it very well. He was a bit emotional. He seemed most upset that he is going to miss so much school and he can't see his friends. He really wants visitors while he is in the hospital and after he gets home as well.
I am doing okay. I have moments where I feel such peace and strength...and then I have moments where I totally fall apart. I got emotional taking Caleb to school this morning because I knew it was going to be a good while before he could come back. And he knew it too. I could tell he was feeling a bit emotional as well.
I think we are as prepared as we can be. His surgery is the first of the day tomorrow. 7 am. From what I understand the detethering surgery can take anywhere from 4-6 hours. I'll update as often as I can on Facebook and I'll post more detailed updates on the blog at least once a day.
We are thankful for the prayers. Keep them coming.
Pray for Caleb to have peace, Glenn and I too.
Pray for Glenn and I to be patient.
Pray for a successful surgery.
A quick recovery with no complications or surprises.
Pray that we can avoid or at least limit the time spent in the PICU-I've heard it is awful.
Pray for Benjamin to feel secure even with all the craziness that lies ahead.
Pray that we all get good rest.
I'll keep you posted.
Caleb is so blessed to have so many people who love him, even people that have never met him. He is a blessing and I love him. Okay, I'm getting all teary-eyed. I'm gonna stop now.
11 comments:
Praying for all of you! You guys can handle this!
I know we don't know each other but my special little SB boy has OT at 8 tom. so I will be up early and praying for your family and Caleb.
We're saying many prayers for sweet Caleb and the family :) Our last hospital stay was only 2 weeks ago and it still makes me emotional when I think about it. Hospitals are no fun, but it sounds like you guys are well prepared and will make the most of it! Caleb is such a rockstar! We love him! We will be sending prayers from North Dakota!
Angie, Chad, Oliver and Palmer
We're praying for all of you...
Tonight at Girl Scouts, the girls had to pass around a stuffed animal and when they held it they had to tell three things about themselves. The other girls announced their favorite colors, their sports, and whatnot.
Esther-Faith announced that she has spina bifida, and that her husband was having surgery tomorrow.
We're all praying for you.
I know you don't know me but I am adult that has SB and just recently went through the same surgery. I will be praying for Caleb specifically that he does not have to much pain that he recovers quick. Pray also for Mom and Dad as they take care of Caleb and also little brother Benjamin. Pray also for Bejamin he maybe to small to understand what is going on but he will know something is going on with his brother. I have a saying that I have to remind myself of all the time that "God is in Control" He knew about this surgery before any of us knew about it. Will be up at 7am so I will be praying at that time.
Praying for you and your family!
You are covered in prayers....and I know that God has you and your family in his hands. I know what it felt like to have SO many people praying for my son; it truly was felt. You will feel his hands...((hugs from California))
Tracy
Thanks for the specific prayer requests. Hope you can get some rest tonight! We're praying for all of you!
Awww!!! Love that!!
Love you guys!!!
I'm praying for you, too! My daughter has spina bifida and has had 3 detethering surgeries so far.
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