Saturday, July 27, 2013

Cincinnati here we come!

Spina Bifida is kinda tricky. It affects the obvious, like mobility....but it also affects things that are not so easily noticed. The not-so-obvious things are by far the most frustrating. Absolutely maddening. I think my fellow SB parents know what I am referring to. Last year when I attended the National Conference, there was a lot of buzz about an intensive week-long program in Cincinnati, a program designed to deal with the not-so-obvious but very prevalent issue that folks with SB deal with. It sounded promising so I filed away the Cinci program in the back of my head. I knew it was an option but I wasn't sure how easy it would be for us to travel all the way to Ohio for their program. Well, we've since decided it is time and we recently found out that we will be traveling to Cincinnati, Ohio for some specialized medical care for Caleb. We are very excited to have this opportunity. Given the nature of why we are going to Cinci, I don't intend to blog about the program or our experience here but I do recognize that there are many SB parents who would welcome more information. So, I created a private blog that will be solely about the program in Cinci. The blog is only open to fellow SB parents who are interested in learning more about the program and want to see what our experience is like. In order to access this private blog, I have to have your email. So, if you are a fellow SB parent and want to get a glimpse into the Cinci program, leave a comment with your email (I won't publish it) or just click the "contact me" button on the right.

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