Monday, June 30, 2014

"How does Caleb.....?"

As Caleb has gotten older, and heavier, we have spent a lot of time working on getting him to do as much as he can on his own. We have focused mostly on those situations that required us to lift him. He's big...and heavy. I can't pick this kid up forever. So, we spent the last year really working on getting him independent in those areas that we had been carrying or lifting him. It has made a huge difference! I almost never lift the kid now. We started off small, just picking one thing that we wanted him to do and we worked on that skill until he mastered it.

I get asked a lot "How does Caleb....?" Fellow SB parents want to know how Caleb gets in and out of the car, on and off the potty, or in and out of the bathtub. I thought I would take some short videos of Caleb doing these things on his own and share them. I figure there is a chance they might help a fellow SB mom or dad out there.

Here is a short video of Caleb getting on the toilet.

We bought a yardstick at the home improvement store and Caleb uses that to turn on the light. We keep a chair by the toilet so that he can use that to help him get on and off.

If there is anything you want to see Caleb do, let me know...maybe I can take a video and share it. :)

Thursday, June 19, 2014

WCMX with Rise Adaptive Sports

After a very successful WCMX event in April, Rise Adaptive Sports (a local organization that sponsors a variety of adaptive sports-they are amazing!) decided to start regular WCMX clinics. They had the first clinic last night.

Boy wasted no time getting on the ramps.

This is what I get when I say "Hey Benjamin, smile for the camera". Stinker. 

Sizing up the ramp.

While the kids got plenty of free time to just play on ramps, they also met with an instructor to practice specific skills and techniques. I love that.

Benjamin and daddy had their own fun on the ramps.

Checking out the half pipe. I have no idea how Glenn got up there. Seriously, no clue.

Benjamin is training to be on America Ninja Warrior (my boys love that show!) He's working hard to get up that warped wall (if you watch Ninja Warrior then you will get that reference).

This was a crazy big least to this momma's eyes. Caleb raced down it as I held my breath.

My boys.

Tuesday, June 17, 2014

Caleb goes national!

You might remember a WCMX event that we took Caleb to back in April. It was a great event and Caleb had a blast. He was even interviewed by CBS news. I was beginning to think that the story would never make it to television but it finally aired tonight on CBS Evening News. The story centers around Aaron Wheelz Fotheringham, but Caleb does make an appearance. Check it out. Click HERE!

Wednesday, June 11, 2014

Insect hunt with Benjamin

Yesterday: Mini-golf, Today: Insect hunt. Benjamin is really interested in insects right now...borderline obsessed really. He has several books from the library about insects and he made a couple of his own insect books. Today I took him to a nature center that we haven't been to before. We were on an insect hunt.

We were armed with our insect checklist and crayon. We were ready to find some bugs!

The nature center had a small indoor area with some cool things to check out.

A really cool microscope with different insect parts to look at. 

We didn't find everything on our insect checklist but we had a good time anyway.

We came home and watch Microcosmos on Netflix.
This is a really neat show. I highly recommend it if you have any insect lovers in your house.

Does anyone see a pattern here? I guess one-on-one time with momma wears a boy out!

Tuesday, June 10, 2014

Mini Golf with Benjamin

Benjamin and I are trying to stay busy and have some one-on-one time while Caleb is at camp this week. Today I took him to Putt-Putt for some mini golf. This was a first for him and he loved it.

Eyeing the hole before he swings. He's all business.

Easy does it.

Eventually his swing started getting a little crazy...and dangerous.

Maybe he thinks the hole is 300 yards away or something.

"The hippo is eating my head!"

Yep, I think he enjoyed his first mini golf experience.

I guess he had too much fun. :)

Monday, June 09, 2014

Sending Caleb to camp

I know I've said this about a dozen times before, but I'm going to say it again anyway...we are so blessed to live in an area with a local and active Spina Bifida Association chapter. Because of the Spina Bifida Association of North Texas we have access to some really great events. One of our favorite things has always been Spina Bifida Family Camp at Camp John Marc. We went to Family Camp for 7 years and loved it each time. Once kids turn 8 years old they "graduate" from Family Camp and are officially old enough for Camp TLC in the summer.

Camp TLC is a week long summer camp for kids (ages 8-15) with Spina Bifida. Each year about 100 kids with SB go to Camp John Marc for a week of major fun...without their parents!! Eeeek!! I have been looking forward to...and dreading this week for about a year now. I knew we would send Caleb to camp but he has never been out of my care, ever. So trusting others to take care of my baby does not come easy. I set my fears aside because I knew this would be such a great week for Caleb. He will be surrounded by kids just like him. That is a beautiful thing. There are tons of volunteers and medical staff on hand to make sure all the kids are well taken care of. Plus, Caleb will be going to camp with several of his buddies that he has known since they were all itty bitty.

Chompin' on some bacon while we were waiting to board the buses.

A quick wheelchair race down the hospital hallway.

Getting ready to board the buses!!

I was so proud of Caleb. I've mentioned before that Caleb struggles with anxiety. He was very anxious the days leading up to camp. He was an absolute mess the night before. He had every right to be anxious. He has never been away from home and we were about to send him to camp for almost a week! I'd be anxious too. But this boy stepped it up and did great when it was time to go. If he was anxious at all, I couldn't tell. 

Waiting with his buddy Nate.

Checking his bus boarding pass.

All smiles before he got on the bus.

On the bus with Nate.

So, Caleb left for camp Sunday and I won't see him again until Friday. Friday! Oh my. It is so weird without him. I keep wondering what he is doing. Luckily I have Benjamin to keep me occupied and busy this week. Benjamin is very excited to have momma all to himself. :)

Tuesday, June 03, 2014

RISE: Kickin' Off Summer Bash

Every year RISE Adaptive sports hosts a "Kickin' off Summer Bash" at a local lake. It's such a great time so we make it a point to go.

Caleb wasted no time and headed straight for the ramps. 

I suspect he would have stayed on the ramps all day if we let him. You can barely drag this kid away.

Although loving on a cute dog is a pretty good motivator. 

We took a quick ride on a boat.

My little thumb sucker. Oy, this kid and his thumb. He's addicted. I think we need an intervention.

It started to rain on us while we were on our boat ride.

Caleb wasn't a fan of getting rained on. I guess he thinks he is made of sugar or something.

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