Wednesday, October 28, 2015

Faces of Spina Bifida: Meet Christian and Micah!



Meet Christian
9 years old

One word to describe Christian: Loving

What does Christian like about himself?

He likes that he is strong.

What makes Christian awesome?

"What makes Christian awesome is that he is the most loving little boy. He's kind hearted and truly cares about everything around him. He is funny, serious and mischievous all in one. He's the best boy a momma would ever want."

What do you know now that you wish you had known when you first heard the SB diagnoses?

"I wish that we would have known that it would be ok. Even when things are uncertain that we would have known that we could handle anything together. He's just a normal little boy and his needs are just like a normal kid."




Meet Micah
8 years old


Describe Micah in one word: Determined


What do you know now that you wish you had known when you first heard the SB diagnoses?

"That it is not a death sentence— the diagnosis does not define who they are! Sitting that day in the doctor’s office with pictures of Micah’s ultrasound, being asked what I knew about Spina Bifida will be forever in my mind. Everyday is presented with questions, areas of grey where there are no sure answers about what is causing what. Is a fever just a virus or is it something more? Or watching the new medical student following the specialist around tickling Micah's feet or asking him to wiggle his toes. All of this does not define this little boy the nurses placed in my arms 8 years ago. He loves geology, excels in reading and writing, loves to wrestle with his brothers and is a pro at giving the stink eye. All of these things is what I wish I would have known that day in the doctor’s office holding ultrasound pictures of a split spine."

What makes Micah awesome?

"No matter what Micah faces he knows God is on his side and he will be triumphant. There are ups and downs, but he’s never down for long because there is always something to celebrate!"


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