Thursday, October 06, 2016

Faces of Spina Bifida: Meet Arwen


Arwen was diagnosed in utero at 18 weeks with myelomeningocele Spina Bifida L4/L5-S3. She is now a happy 6 year old who loves life and keeps a smile on her face even when her life goes through the trenches. Her fighting spirit and strength come only from our Savior, Jesus Christ who already paid the price for her on that cross so many years ago. She is able to walk unassisted but has a gait/crouch with rotation, but she fights hard every day to not let that keep her down. Arwen has a neurogenic bowel and bladder, so she is cathed multiple times a day and follows the Cincinnati Colorectal Bowel Enema Program. Arwen has a VP shunt for hydrocephalus (fluid on the brain) that was put in when she was 9 days old. We are very thankful that we’ve only had a few scares with the shunt starting to malfunction, but has corrected itself without any intervention.We look forward to what God has in store for her in the years to come. She will have many good and bad days, but we will continue to point her to the cross through each trial and blessing she faces.

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