Word that describes him: Charismatic
What I wish I had known before having a child with SB: It would change my perspective on life in such a positive way...he's medically complex yet so cheerful, resilient, and outgoing... he's taught me to live life to the fullest no matter the circumstances and to overcome and conquer adversity with a smile and real heart.
What I want other to know: We like Questions! We like informing and advocating! It's okay for you and your children to ask question. He may be physically different but our similarities outweigh the differences. Include people who are different, a lot of the time people with disabilities can do the same things you and I can in just a different way.
Damon also loves cars, trucks, and trains. Typical boy!