Sunday, October 30, 2016

Faces of Spina Bifida: Meet Joseph, Ethan, and Lane


Joseph has myelomeningocele, hydrocephalus, and Chiari Malformation. He and his wonderful sister came to live with us in January of 2015, when he was almost 2 years old. We were told he would probably never walk, but within a couple of months of moving in with us, and using his walker, he was off and running. Literally. He loves ninja turtles, fire trucks, and baseball. He is brave, smart, hilarious, and dramatic. His life is precious, and is one of the greatest gifts we've received. We might have to do a bunch of things differently than other people do, but we still have fun, and accomplish what we set out to. There are so many things that we took for granted before getting to have Joseph; I'm so grateful to him for opening our eyes to a more purposeful way of living. He is our miracle, and I think everyone that meets him feels a little of his joy.


In Ethan's words: SB is not always easy to deal with but you get right back up and keep going. I never want anyone to feel sorry for me...I have a great life.


He is 6 and loves helping coach softball and hunting with his dad. Lane wanted to be Santa for Halloween!

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