Sunday, February 05, 2017

A Setback

I'm not going to lie, it has been a rough couple of months. Even with the great success of the SPML procedure and surviving 5 weeks in leg casts...Caleb has had several bumps in the road. He has battled 3 bladder infections in less than two months. Every time one infection clears up, another infection comes knocking on the door. We aren't sure why and preliminary testing hasn't shown any noticeable cause.

Then this happened.

See that swollen right leg? I first noticed it early Friday but didn't think much of it at the time. He has had some swelling here and there since the casts came off so I figured he may have just overworked it in therapy or something. So I iced it and had him take it easy that day. But it was worse yesterday and it felt hot to the touch. He even had some pain which was a huge red flag to me. Caleb doesn't have a lot of feeling in his legs so if he is feeling any pain at all, I know it's bad.

I took him to Urgent Care. 

Urgent Care sent us to the ER because they were concerned it was an infection in the joint.

After x-rays, blood work, and ultrasound the verdict is a broken tibia and fibula in the right leg. 
The ER did a temporary splint to support the leg until we can get in to see the orthopedic surgeon this week.

I'm heartbroken. This was pretty much my worst fear after his casts came off. We have no idea how it happened or when it happened. I suspect it happened sometime between Wednesday and Thursday but I'm not certain. He has been so careful with his legs, knowing that they are fragile. I can't think of anything that has happened in the last few days that could have caused this. We'll likely never know. I'm so very, very sad. This is such a huge setback for him. I'm guessing this leg will go back in a cast for several more weeks which only leads to his bones becoming more brittle than they already are. I'm worried that he will lose the straightness we worked so hard to get and the SPML surgery will be for nothing. There are so many "what ifs" running through my mind right now. I hate this so much. 

As usual, Caleb is taking it all in stride. He's not nearly as upset as I am. He's just been through so much the last couple of months and it has to make him weary. I know I'm weary. He was just doing so well, even walking with his KAFO's and walker. This just feels like a huge step backwards. I don't want to go backward, I want to go forward. 

I'll post more after we meet with the orthopedic surgeon this week. Hopefully we'll have a plan in place soon. For now, we'll keep doing what we've been doing....just get through one day at a time. 

Prayers appreciated. Even when I don't understand the "why" of things, I do believe in the peace that only God can give. I'm struggling to feel that peace right now, but I'll get there.


3 comments:

CT_Mom on Babycenter said...

So sorry to hear about this new setback, but wanted to give you a *little* bit of hope. When my April broke her tibia 2 years ago, the treatment was a STRAIGHT leg. Granted, it was just the tibia (not both) and we didn't figure out what had happened until it had already started to heal. But the orthopedic surgeon wanted her totally straight-legged, all the time. And preferably weight bearing as much as she could tolerate, too.
This meant wearing a knee immobilizer and getting a lock put onto the knee joint of her HKAFOs.

With any luck, it will be a similar thing for Caleb, and hopefully not with a bent knee!

Tiffany said...

Praying for Caleb!!

goodie girl said...

Praying for straight leg and standing as much as possible.
Enjoy seeing Caleb almost as tall as Mom!

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