Showing posts with label Caleb. Show all posts
Showing posts with label Caleb. Show all posts

Monday, May 15, 2017

RISE Kicking off Summer Bash

We took the boys to the lake on Saturday for the RISE Kicking off Summer Bash. It is an annual adaptive sports events. I failed to take many photos but here are the moments I managed to capture.


There were several water sports at the event.

My boys went tubing. 

Frisbee golf. 

Hallow had her own fun in the lake. 

Afterwards, we headed out for an early Mother's Day lunch. I love these boys even though they make me absolutely crazy. Stressed but blessed ya'll.



Friday, May 12, 2017

"Because we can" Homeschool Day

Every so often I like to surprise the boys with a "because we can" homeschool day. On these days, we "skip" school and do something fun....because we can. This past Monday we had a fun day at the zoo with Aunt Rachel.


I wonder how much longer I can convince them to pose for these types of pictures. It's getting harder and harder ya'll. 

Sweet baby elephant.

Feeding the giraffes is always a big hit with my boys.

This is the only acceptable time to spend $5 on a handful of lettuce.


Benjamin would rather go rock climbing than look at animals. "Hey mom, take my picture on this rock."

"Hey mom, take my picture on THIS rock."

"Hey mom, take my picture on this rock!"

Silliness in the gift shop.

More silliness.





Sunday, April 23, 2017

Easter

Last Saturday was the annual Easter lunch and Egg hunt at Granny and Paw-Paw's. Good food, good weather, and good times.

Food and a Nerf gun...what else does a boy need?

This girl was made for country living.


Egg huntin' time!



Benjamin spent the entire day having Nerf wars with cousin Hunter. I barely saw him.

A rare family photo on Easter morning.



Thursday, April 13, 2017

MeMe's

We went to visit MeMe this past weekend. It's been a good while since we have made it out there to see her. The boys always enjoy a weekend at MeMe's.

No one has a better backyard than MeMe. I would love for this to be my view every morning. 



He's so stinkin' cute.

Benjamin getting a big kiss from Hallow and Caleb photobombing with his hand!

Hallow loved the big backyard as well. She was very curious about the pond but not enough to actually jump in.

I feel like Benjamin is just begging to have his face pushed into the dirty birdbath water and I can tell Caleb is already thinking about doing it.

He loves to pose!



Sunday, March 05, 2017

Cast is off!

Caleb got his cast off this week! 


He had good bone growth around the break so the ortho was comfortable taking the cast off. Caleb still has to take it easy, no weight bearing at all for another month. We'll go back for x-rays in April just to make sure everything looks good. 

I'm so glad to have that cast gone. Now to wrap Caleb in bubble wrap so this never happens again. 

Thursday, February 09, 2017

Quick Update

This has been the longest week ever! The orthopedic surgeon couldn't get Caleb in until today (Thursday) so I've spent the entire week in a state of high stress and worry over this broken leg. Apparently stuff like this is common and no biggie to ortho docs. I think they forget that there is a very worried momma pacing the floors, desperate for some assurance. 

Anyway, Caleb is now sportin' a bright orange cast. He will wear the cast for 3 weeks and then we'll reassess. The ortho doesn't want to keep him in a cast much longer than that because it will only make the bones weaker. 


I feel a bit better now that we have a plan in place but this week was rough on me. I don't know why I took this break so hard. It certainly isn't the hardest thing we've been through with Caleb. Maybe I was barely hanging on and this was the thing that just pushed me over the edge. His broken leg broke my heart. I cried and cried this week. I really struggled with this one. It just felt like such a setback and it still does. I know we'll get through it. I know this is just a rough season we are in and it will pass. Thankfully Caleb couldn't care less about his broken leg. He just keeps rollin' on like it's no big deal. I wish I was able to do that!

Sunday, February 05, 2017

A Setback

I'm not going to lie, it has been a rough couple of months. Even with the great success of the SPML procedure and surviving 5 weeks in leg casts...Caleb has had several bumps in the road. He has battled 3 bladder infections in less than two months. Every time one infection clears up, another infection comes knocking on the door. We aren't sure why and preliminary testing hasn't shown any noticeable cause.

Then this happened.

See that swollen right leg? I first noticed it early Friday but didn't think much of it at the time. He has had some swelling here and there since the casts came off so I figured he may have just overworked it in therapy or something. So I iced it and had him take it easy that day. But it was worse yesterday and it felt hot to the touch. He even had some pain which was a huge red flag to me. Caleb doesn't have a lot of feeling in his legs so if he is feeling any pain at all, I know it's bad.

I took him to Urgent Care. 

Urgent Care sent us to the ER because they were concerned it was an infection in the joint.

After x-rays, blood work, and ultrasound the verdict is a broken tibia and fibula in the right leg. 
The ER did a temporary splint to support the leg until we can get in to see the orthopedic surgeon this week.

I'm heartbroken. This was pretty much my worst fear after his casts came off. We have no idea how it happened or when it happened. I suspect it happened sometime between Wednesday and Thursday but I'm not certain. He has been so careful with his legs, knowing that they are fragile. I can't think of anything that has happened in the last few days that could have caused this. We'll likely never know. I'm so very, very sad. This is such a huge setback for him. I'm guessing this leg will go back in a cast for several more weeks which only leads to his bones becoming more brittle than they already are. I'm worried that he will lose the straightness we worked so hard to get and the SPML surgery will be for nothing. There are so many "what ifs" running through my mind right now. I hate this so much. 

As usual, Caleb is taking it all in stride. He's not nearly as upset as I am. He's just been through so much the last couple of months and it has to make him weary. I know I'm weary. He was just doing so well, even walking with his KAFO's and walker. This just feels like a huge step backwards. I don't want to go backward, I want to go forward. 

I'll post more after we meet with the orthopedic surgeon this week. Hopefully we'll have a plan in place soon. For now, we'll keep doing what we've been doing....just get through one day at a time. 

Prayers appreciated. Even when I don't understand the "why" of things, I do believe in the peace that only God can give. I'm struggling to feel that peace right now, but I'll get there.


Thursday, December 29, 2016

SPML and Knee Capsulotomy: A Success!

After 5 weeks, Caleb is officially cast free! He had his final trip to Galveston this week for the cast removal.

Prior to the SPML and Knee Capsulotomy surgery, the bend in Caleb's legs was close to 70°
His legs looked like this. Trying to get them straight was like trying to straighten bent steel. Impossible.

Now his legs look like this.

From 70° to 7°! His legs are so perfectly straight. I can't believe it. 

We still have to be diligent about keeping them stretched and straight. He has to wear his KAFO's a minimum of 8 hours a day (overnight counts too). His bones are weak and fragile after 5 weeks in casts so we have to be careful he doesn't do anything that could cause a break, which means no wheelchair basketball for a bit. 

His skin looks pretty gnarly after being in casts for so long so I'll wait a bit before I share photos of his incision site. 

I could not be more pleased. I really didn't know what to expect because his contractures were so bad. I can't believe we were able to get them almost completely straight. 7° is not even noticeable. 

He's almost as tall as me!

Caleb has been such a trooper throughout this whole thing. I'm so proud of the way he handled everything. We still have work to do to regain motion and strength in those legs but now that they are straight, we've got something to work with. I'm so glad we made this decision.

I'll continue to share his progress over the next few weeks. 

Tuesday, November 01, 2016

Minecraft Halloween

Minecraft is incredibly popular in this house so our theme for Halloween was a no-brainer.


Our Minecraft Jack-o-lanterns.

Benjamin is a Skeleton and Caleb is a Zombie riding a spider....if you know Minecraft then you understand. Benjamin had the idea to decorate our trunk to look like the inside of a Minecraft house so I went with that. It came out great and we actually won "best trunk" at the trunk-or-treat.

Benjamin loved his costume. I've never seen that kid so excited. 

All 8 legs made it through the night which was nothing short of a miracle. Watching Caleb navigate this spider was hysterical. He kept bumping into things and hitting people with his spider abdomen!

A close-up of the trunk. I just painted some cardboard brown to look like walls. I printed out the TNT sign, bookcase, and the Minecraft wall art. I made the chest out of a shoe box and found the torch printables online, I added lights to make them really glow. Our Minecraft trunk was a huge hit. Everyone, kids and adults, commented on it. 

Poor kid couldn't see a thing but he had a blast anyway. You can actually find these Minecraft heads online. I just printed out all the sides, made a box out of cardboard, glued the head pieces on, and done! For the bones, I just used chrome duct tape on a black turtleneck and black pants. Of course it was in the upper 80's here in Texas so my boy was hot. Oh well.

The spider face. I added red lights for the eyes which looked really cool once the sun went down.

Torches blazing.

It was a great night, the boys looked great and the trunk was a winner. It was fun but I'm so glad October is over. I made 26 wheelchair costume kits from my Etsy shop so by the time I got around to making costumes for the boys, I was DONE. I barely had anything left in me these last few days, but it got done. Whew, I'm glad it's over. 

Yesterday may have been Halloween, but more importantly, it was Hallow's 3rd birthday. 

She's so pretty. I love her.


Links:
Minecraft Skeleton Head
Minecraft Zombie Head
Minecraft Torches


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