Tonight was "meet the teacher" night at Caleb's school. Considering he has been at this school since he was 3 we feel like pros at this point. Caleb is repeating kindergarten but he does have a new teacher. We thought it would feel more like a new year to him if he was in a new room, with a new teacher, making new friends. He was pretty excited about going up to the school tonight. His new class has a really nice layout so I think it will be easy for him to get around with his walker and/or wheelchair.
Sitting at his table. He will have 2 very pretty girls sitting with him at the table so I have a feeling that I will be hearing about them.
Gorgeous boy. Look at that smile.
You know I had to get a picture of him with his name plate! I asked him to smile and this was the face I got. Stinker.
Seeing as how this is his second year of kindergarten, I don't have the nervousness and anxiety I had last year. I know that he is going to do great because he did great last year. I am very excited about something new happening at his school this year that I have to share with all of you. At the end of the last school year I asked the PTA to consider having a representative for the families that have children in special education. I think when you have a child with special needs you see things from a different perspective and that perspective needs a voice in the school. So, the PTA has created a new board position, Special Populations Chair, and they have asked me to fill that position. I am so excited! I think this will be such a blessing to the school and to the families that have a child in special education. It's a brand new position on the PTA so we will be starting from scratch. I have some ideas and I would LOVE to hear from those of you that have school age kids in special education. Are there things that you wish your child's school offered? Are there things that you would love to see your school do? What kind of resources would be valuable to you as a parent of a child in special education? Think in terms of what the PTA can contribute. I would love to hear your thoughts if you have something to offer.
And on a totally different note, Caleb has SB clinic this week and I spent a lot of time with the doctor there. We talked a lot about Caleb's headaches and he mentioned what some of you mentioned, slit ventricle syndrome. He said it is a possibility but would rather rule out other things first. He was surprised to see how much Caleb's ditropan dose has gone up this summer (it more than doubled) and he had some concerns about it. I told him that Caleb is so sensitive to overheating and will often get flushed even inside the house. It causes his body temp to shoot up to about 100.4 and his skin gets burning hot. Once he cools off his temp comes down and he is fine. He talked about how Ditropan also has a neurological impact and can affect behavior and attention as well. So, he wants us to try "Enablex". Caleb has taken "Enablex" (once a day pill) for 2 days now and he hasn't gotten overheated once. It's still early since it is only day 2 but I like what I see so far. So time will tell.
And of course, we had to "redefine" SB while we were at clinic.