Showing posts with label KAFO's. Show all posts
Showing posts with label KAFO's. Show all posts

Sunday, October 27, 2013

3rd Shuntiversary!

I am a few days late in posting this but Caleb's shunt turned 3 years old on Thursday. This is Caleb's second shunt that he got from a revision in 2010. His first shunt lasted just over 5 years. We have a relatively new tradition of celebrating the shunt's "birthday", we call it the Shuntiversary! Anyone familiar with a shunt knows that there are no guarantees with these tricky little things. They can decide to stop working at any time. A shunt can work for 20 years or 20 days. You just never know. So when your child's shunt is working nicely and doing it's very important job, you celebrate!

You can't have a proper celebration without some kind of sweet treat, so we picked up a box of gluten free brownie mix at the store. The GF brownie mix was pretty good...after I slapped on about an inch of yummy homemade chocolate frosting.

Mixing it up! Caleb is wearing his KAFO's so he can stand up at the counter. This is actually really hard work for him.

Benjamin got a turn at mixing too.

We lit 3 candles, sang "Happy Birthday" to the shunt and then ate a brownie.

Here's to another year! Hopefully we'll be celebrating the 4th Shuntiversary next year. 

Tuesday, May 07, 2013

Fitted for KAFO's

Three months ago Caleb saw his ortho doctor and I asked for KAFO's (Knee-Ankle-Foot-Orthosis). I wanted them because I could see that Caleb was motivated to walk, he wanted to walk, but his knees just can't take him more than a few steps. The ortho fought me a little on the KAFO's at that time, and gave us knee immobilizers instead. The knee immobilizers seemed promising at first but I quickly realized that they weren't the right thing for Caleb. It seemed like they hindered more than they helped.

So today we went back to ortho and I had already decided that I wasn't leaving there until Caleb had been fitted for some KAFO's. Mama Bear was ready to fight...well I didn't have to. Ortho agreed and Caleb was fitted for KAFO's and a new pair of AFO's (he has outgrown his current pair).

He was fitted for AFO's first.

Next came the KAFO fitting. This took quite some time. Thank goodness for the Ipod.

Cutting the cast off.

A perfect mold of his leg. Pretty cool.

We pick up the braces at the end of May. I can't wait to see how the KAFO's turn out. 



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