This is as straight as Caleb's right leg will go. There is so much tightness at the back of his leg and knee. It took quite a bit of effort just to get it this straight.
His right foot.
It just kinda curls and you can't really get it to sit flat. It naturally flexes up and has gotten so tight. The look of his feet really bother him.
His left leg isn't as tight as the right but it is still a mess.
His toes do a weird thing on this foot.
This is the "go-to" position for his legs when he is sitting. They just draw up like this.
Same thing when he is is on his belly.
Caleb's legs never relax. Never. He has spasms in his legs regularly where they just jerk around on their own (usually the worst when he first wakes up in the morning). Even we he sleeps his legs jerk up. He sleeps all night with his legs so tight in the worst positions. Trying to get them straight is like trying to straighten a metal bar. They won't budge, they fight the whole way.
I have tried everything I can to help and I'm losing this battle ya'll. I put his KAFO's on him to force those legs as straight as I can get them. We have tried several things to use overnight while he is sleeping but because his legs are constantly fighting against begin straight, everything we have tried (night bracing, knee immobilizers, etc) all leave horrible marks on his legs and feet.
We see his orthopedic surgeon next week and I want to push for some kind of intervention. I'm tired of fighting a battle I can't win and I see how much this is starting to bother Caleb. I'm not sure what is the best thing to do here so I'm asking you guys to share your experiences. I just refuse to accept that this is just how things are and there isn't anything I can do to fix it. I'm not sure if tendon release is the way to go. I don't know if Botox will do a thing for this.
Have any of you won the battle against contractures? Please share so I can go to his appointment next week with a plan in mind.